May 13, 2022 is a day I’ll remember forever — it was the day I got my diagnosis, somewhat unexpectedly delivered in a handy PDF file that I could read on my phone, on a Friday evening, while walking back home from a beachside beer with friends, and with my

I’m afraid I have very little to share about 🦀cancer🦀 in this one — sorry, intrepid readers — but I did have to shout out to these handsome lads: This past Wednesday, I flew back to Bethesda to start my next treatment cycle, to begin the routine yet again — fly across

Hey y’all—it’s been a while. Hard to believe that we’re already in August! For many of us, we feel the end of summer approaching and all the lamentations and regrets and plans to jam-pack the next few weeks that come with that. For my part, while

Warning: Images of medical scans in this post, if that’s not your jam. At the end of my last post I had a short update from the “Spoke Too Soon” department, and boy did I speak too soon. What started as a rash (appearing like an omen before our

It’s been really nice to be home. After a week and a half in a hotel in a foreign suburban land, shuttling between hospital and clinic, having various fluids either added or removed from my body on a daily basis, being far from everyone I know and love... yeah,

Trigger warning: Some photos of needles and stuff. Today’s my last day in the outpatient clinic here at NIH, as long as my blood tests come back OK. I’ve had multiple blood draws every day in the last week as the docs got my baselines and monitored my

Almost sounds like a Law & Order episode (hi, E)! Yesterday I was accepted into the ViPOR clinical trial at the National Cancer Institute! More context here if you missed it. It’s a huge relief and as expected I started treatment today. I’ll be here at the NCI

Time has been pretty strange recently. Two months ago we were in Taos with our good friends, celebrating Esther’s birthday. One month ago I was in the Swedish emergency room and starting a battery of tests. Today I’m sitting at a cafe in Bethesda, Maryland (reasonably the last

I figured I’d share a few of the things that we have been reading and watching the last couple of weeks. If you really want to be a mantle cell lymphoma nerd (seriously, this one is dense and you’ll want some caffeine), this is an annual update on